Category: Uncategorized


Rare Disease Day: February 28, 2019

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Photo Project

In October 2018, the ACDA organized a photo project of bereaved parents. Click to view.

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Rare Disease Day: February 28, 2018

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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Families in the News

Families affected by ACDMPV have shared their stories and raised awareness through various news outlets. Read the articles here.

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Rare Disease Day: February 28, 2017

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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A look back at 2016:

Read a brief summary of the ACDA in 2016.

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NIH Grant Announcement

It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was awarded a NIH R01 grant in the amount of $1,952,000 for ACDMPV research over the course of four years. This multi-year…

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Rare Disease Day: February 29, 2016

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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