Category: Uncategorized


Rare Disease Day: February 29, 2024

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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Give Back While You Holiday Shop

Click here for a list of ways to give this holiday season while raising money for ACDMPV research.

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NIH Grant Announcement

It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was recently awarded a NIH R01 grant in August 2023 in excess of $3.1 million for ACDMPV research over the course of…

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ACDA Map Project

In October 2023, the ACDA created an interactive map project, with each candle representing a child affected by ACDMPV. Click to view.

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October

October is National Pregnancy and Infant Loss Awareness Month. Click to participate in the International Wave of Light.

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Rare Disease Day: February 28, 2023

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Name Project

In October 2022, the ACDA created a story telling project to share the meaning behind the names of children affected by ACDMPV. Click to view.

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Rare Disease Day: February 28, 2022

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Audio Project

In October 2021, the ACDA created an audio project to share the name of children affected by ACDMPV, as spoken by their parents and families. Click to listen.

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Rare Disease Day: February 28, 2021

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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