Category: Uncategorized


Rare Disease Day: February 28, 2023

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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Give Back While You Holiday Shop

Click here for a list of ways to give this holiday season while raising money for ACDMPV research.

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ACDA Name Project

In October 2022, the ACDA created a story telling project to share the meaning behind the names of children affected by ACDMPV. Click to view.

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October

October is National Pregnancy and Infant Loss Awareness Month. Click to participate in the International Wave of Light.

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Rare Disease Day: February 28, 2022

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

Read More

ACDA Audio Project

In October 2021, the ACDA created an audio project to share the name of children affected by ACDMPV, as spoken by their parents and families. Click to listen.

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Rare Disease Day: February 28, 2021

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Written Word Project

In October 2020, the ACDA created a written word project describing grief in the words of our ACDA registered families. Click to view.

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ACDA Memorial Wall

In October 2019, the ACDA created a memorial wall dedicated to the memory of our children. Click to view.

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October

October is National Pregnancy and Infant Loss Awareness Month. Click to participate in the International Wave of Light.

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