ACD Association
It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was recently awarded a NIH R01 grant in August 2023 in excess of $3.1 million for ACDMPV research over the course of…
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ACDA Project Pocket Hugs
In October 2025, the ACDA compiled “Project Pocket Hugs: A Little Hug for Someone You Love”, with hundreds of teddy bears named after a child affected by ACDMPV. Click to view in detail.
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October
October is National Pregnancy and Infant Loss Awareness Month. Click to participate in the International Wave of Light.
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Participate in Research
A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.
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ACDA Digital Quilt Project
In October 2024, the ACDA created a digital quilt project, with each square representing a child affected by ACDMPV. Click to view in detail.
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ACDA Map Project
In October 2023, the ACDA created an interactive map project, with each candle representing a child affected by ACDMPV. Click to view.
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ACDA Name Project
In October 2022, the ACDA created a story telling project to share the meaning behind the names of children affected by ACDMPV. Click to view.
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ACDA Audio Project
In October 2021, the ACDA created an audio project to share the name of children affected by ACDMPV, as spoken by their parents and families. Click to listen.
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ACDA Written Word Project
In October 2020, the ACDA created a written word project describing grief in the words of our ACDA registered families. Click to view.
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ACDA Memorial Wall
In October 2019, the ACDA created a memorial wall dedicated to the memory of our children. Click to view.
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ACDA Photo Project
In October 2018, the ACDA organized a photo project of bereaved parents. Click to view.
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Families in the News
Families affected by ACDMPV have shared their stories and raised awareness through various news outlets. Read the articles here.
The ACDA regularly publishes a newsletter to provide families with updates on developments within the ACDA community and highlight research advancements related to ACDMPV. View Newsletter Archive →
Connect with us on Facebook, Instagram or contact us at the addresses below. If your family has been affected by ACDMPV, please also be sure to REGISTER with the ACDA. Social Media: facebook.com/ACD.Association instagram.com/alveolar_capillary_dysplasia/ Email:president@acdassociation.orgsecretary@acdassociation.orgtreasurer@acdassociation.org Register:If your family has been…
Direct Donation Fund ACDMPV research in honor of a loved one. Your donation to the ACDA supports groundbreaking research to find the cause of and cure for ACDMPV. If you would like to designate your donation in honor of a…
News
Coffee Fundraiser
The ACDA is pleased to announce an ongoing fundraiser through Giving Bean! Thank you to Renee Murray, ACDA mom to Callie (May 15, 2015 – May 23, 2015), for coordinating this drive. Please see her message below: “Hi all! The…
ACDA Store
Check out the ACDA shop on Spreadshirt! We opened our own online shop to sell directly to you with a designated portion of the sale supporting the ACDA. The ACDA earns a commission equal to 20% of every product sold!…
Participate in Research
A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.
Upcoming Dates
February 28, 2025 – Rare Disease Day Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year –…
Brochures
The ACDA brochure has been updated and has a wonderful new look. View, save, email or print your own copies of the ACDA brochure; click for ENGLISH, DUTCH or ITALIAN. *The ACDA extends its appreciation to Mathijs Lourens and Roelina Jut…
ACD Association 