February 28, 2022 – Rare Disease Day
Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year – February 28 in 2022. The ACDA has signed on once again to partner with NORD to support this awareness campaign. Anyone can be involved in Rare Disease Day and there are many suggested activities. The day has been established as a grassroots advocacy day and we encourage everyone to participate in some way. Click to see how the ACDA supported Rare Disease Day in prior years (2021, 2020, 2019, 2018, 2017, 2016)! Click HERE for ways to participate in the United States and click HERE to visit the EURORDIS website for Rare Disease Day in Europe.
May 1, 2022 – International Bereaved Mother’s Day
International Bereaved Mother’s Day was created as part of the CarlyMarie Project to “educate society about the true meaning of Mother’s Day…it is a heart centered attempt at healing the official Mother’s Day.”
August 19, 2022 – Day of Hope
“August 19th is about coming together as a whole community to openly speak about these children and celebrating their short lives. Each year thousands of people around the globe take part in The Day Of Hope by hanging up prayer flags in honour of their babies and children that have died. Many people also share our Prayer Flag awareness images on facebook, instagram, twitter and other social networks.” From the CarlyMarie Project.
October – Pregnancy and Infant Loss Awareness Month
In October 1988, President Ronald Reagan proclaimed October as National Pregnancy and Infant Loss Awareness Month. “When a child loses his parent, they are called an orphan. When a spouse loses her or his partner, they are called a widow or widower. When parents lose their child, there isn’t a word to describe them. This month recognizes the loss so many parents experience across the United States and around the world.”
October 15, 2022 – Pregnancy and Infant Loss Remembrance Day
The October 15th Pregnancy and Infant Loss Remembrance Day campaign began in 2002 and is a day of remembrance for pregnancy loss and infant death. The day is observed with ceremonies and candle-lighting vigils, concluding with the International Wave of Light, a worldwide lighting of candles. The International Wave of Light invites participants from around the world to light a candle at 7:00 p.m. on October 15 in their respective time zones, and to leave the candle burning for at least an hour. The result is a continuous chain of light spanning the globe for a 24 hour period in honor and remembrance of our babies we have lost.
November 29, 2022 – Giving Tuesday
We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. On Tuesday, November 29, 2022, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give. It’s a simple idea. Just find a way for your family, your community, your company or your organization to come together to give something more. Then tell everyone you can about how you are giving. We hope you will consider giving to the ACDA on #GivingTuesday.