• Participate in Research

    A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.

  • ACDA Name Project

    In October 2022, the ACDA created a story telling project to share the meaning behind the names of children affected by ACDMPV. Click to view.

  • ACDA Audio Project

    In October 2021, the ACDA created an audio project to share the name of children affected by ACDMPV, as spoken by their parents and families. Click to listen.

  • ACDA Written Word Project

    In October 2020, the ACDA created a written word project describing grief in the words of our ACDA registered families. Click to view.

  • ACDA Memorial Wall

    In October 2019, the ACDA created a memorial wall dedicated to the memory of our children. Click to view.

  • ACDA Photo Project

    In October 2018, the ACDA organized a photo project of bereaved parents. Click to view.

  • Families in the News

    Families affected by ACDMPV have shared their stories and raised awareness through various news outlets. Read the articles here.

The ACDA publishes a quarterly newsletter to provide families with updates on developments within the ACDA and in the medical community. A version of each newsletter is available online (starting with Winter 2002); however, family details have been removed to…

Connect with us on Facebook and Twitter or contact us at the addresses below. If your family has been affected by ACDMPV, please also REGISTER with the ACDA. Social Media:    facebook.com/ACD.Association    @acdassociation Email: president@acdassociation.org secretary@acdassociation.org treasurer@acdassociation.org Address: Alveolar…

Donate Now: The ACDA is a 501(c)(3) non-profit, tax-exempt organization as designated by the Internal Revenue Code of the United States. Below are three ways to make a secure tax-deductible donation to the ACDA: 1. Make a secure tax-deductible donation…


NIH Grant Announcement

It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was awarded a NIH R01 grant in the amount of $1,952,000 for ACDMPV research over the course of four years. This multi-year…

Coffee Fundraiser

The ACDA is pleased to announce an ongoing fundraiser through Giving Bean! Thank you to Renee Murray, ACDA mom to Callie (May 15, 2015 – May 23, 2015), for coordinating this drive. Please see her message below: “Hi all! The…

ACDA Store

Check out the ACDA shop on Spreadshirt! We opened our own online shop to sell directly to you with a designated portion of the sale supporting the ACDA. The ACDA earns a commission equal to 20% of every product sold!…

Participate in Research

A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.

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Upcoming Dates

February 28, 2023 – Rare Disease Day Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year –…

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The ACDA brochure has been updated and has a wonderful new look.  View, save, email or print your own copies of the ACDA brochure; click for ENGLISH, DUTCH or ITALIAN. *The ACDA extends its appreciation to Mathijs Lourens and Roelina Jut…

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