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The ACDA publishes a quarterly newsletter to provide families with updates on developments within the ACDA and in the medical community. A version of each newsletter is available online (starting with Winter 2002); however, family details have been removed to…

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Connect with us on Facebook and Twitter or contact us at the addresses below. If your family has been affected by ACDMPV, please also REGISTER with the ACDA. @acdassociation The Alveolar Capillary Dysplasia Association c/o Steve…

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Donate Now: The ACDA is a 501(c)(3) non-profit, tax-exempt organization as designated by the Internal Revenue Code of the United States. Below are three ways to make a secure tax-deductible donation to the ACDA: 1. Click HERE to make a…



Coffee Fundraiser

The ACDA is pleased to announce a new fundraiser through Giving Bean! Thank you to Renee Murray, ACDA mom to Callie (May 15, 2015 – May 23, 2015), for coordinating this drive. Please see her message below: “Hi all! The…


ACDA Store

Check out the ACDA shop on Spreadshirt! We opened our own online shop to sell directly to you with a designated portion of the sale supporting the ACDA. The ACDA earns a commission equal to 20% of every product sold!…

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Thank You!

Logo: Our beautiful new logo was designed and created by Ali Christensen. Ali is a friend of Bob and Kristen Rilling, ACDA parents to Fallon (October 10, 2013 – October 21, 2013). Ali and Kristen grew up together playing soccer…


Upcoming Dates

February 28, 2017 – Rare Disease Day Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year –…

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Participate in Research

A primary goal of the ACD Association is to promote and monitor ACDMPV research by medical professionals around the globe.

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The ACDA Brochure has been updated and has a wonderful new look thanks to ACDA mom Michaela Oltmans. The ACDA Brochure is also now available in ITALIAN, GERMAN and FRENCH (a big Thank You to ACDA mom Federica di Paolo…

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