ACD AssociationRare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.
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Participate in Research
A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.
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ACDA Memorial Wall
In October 2019, the ACDA created a memorial wall dedicated to the memory of our children. Click to view.
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ACDA Photo Project
In October 2018, the ACDA organized a photo project of bereaved parents. Click to view.
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Families in the News
Families affected by ACDMPV have shared their stories and raised awareness through various news outlets. Read the articles here.
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The ACDA publishes a quarterly newsletter to provide families with updates on developments within the ACDA and in the medical community. A version of each newsletter is available online (starting with Winter 2002); however, family details have been removed to…
Connect with us on Facebook and Twitter or contact us at the addresses below. If your family has been affected by ACDMPV, please also REGISTER with the ACDA. Social Media: facebook.com/ACD.Association @acdassociation Email: president@acdassociation.org secretary@acdassociation.org treasurer@acdassociation.org Address: Alveolar…
Donate Now: The ACDA is a 501(c)(3) non-profit, tax-exempt organization as designated by the Internal Revenue Code of the United States. Below are three ways to make a secure tax-deductible donation to the ACDA: 1. Click HERE to make a…
News
NIH Grant Announcement
May 31, 2017 – It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was recently awarded a NIH R01 grant in the amount of $1,952,000 for ACDMPV research over the course…
Coffee Fundraiser
The ACDA is pleased to announce an ongoing fundraiser through Giving Bean! Thank you to Renee Murray, ACDA mom to Callie (May 15, 2015 – May 23, 2015), for coordinating this drive. Please see her message below: “Hi all! The…
Upcoming Dates
August 19, 2020 – Day of Hope “August 19th is about coming together as a whole community to openly speak about these children and celebrating their short lives. Each year thousands of people around the globe take part in The…
Participate in Research
A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe.
Brochures
The ACDA brochure has been updated and has a wonderful new look. View, save, email or print your own copies of the ACDA brochure; click for ENGLISH, DUTCH or ITALIAN. *The ACDA extends its appreciation to Mathijs Lourens and Roelina Jut…
