Category: Uncategorized


ACDA Project Pocket Hugs

In October 2025, the ACDA compiled “Project Pocket Hugs: A Little Hug for Someone You Love”, with hundreds of teddy bears named after a child affected by ACDMPV. Click to view in detail.

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October

October is National Pregnancy and Infant Loss Awareness Month. Click to participate in the International Wave of Light.

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Rare Disease Day: February 28, 2025

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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Give Back While You Holiday Shop

Click here for a list of ways to give this holiday season while raising money for ACDMPV research.

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NIH Grant Announcement

It is the great pleasure of the ACDA to announce Baylor College of Medicine in Houston, Texas, USA was recently awarded a NIH R01 grant in August 2023 in excess of $3.1 million for ACDMPV research over the course of…

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ACDA Digital Quilt Project

In October 2024, the ACDA created a digital quilt project, with each square representing a child affected by ACDMPV. Click to view in detail.

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Rare Disease Day: February 29, 2024

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Map Project

In October 2023, the ACDA created an interactive map project, with each candle representing a child affected by ACDMPV. Click to view.

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Rare Disease Day: February 28, 2023

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases.

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ACDA Name Project

In October 2022, the ACDA created a story telling project to share the meaning behind the names of children affected by ACDMPV. Click to view.

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