A look back at 2016:

  • Twenty new families registered with the ACDA. These families are from the USA, UK, Netherlands, Germany, Philippines and Canada.
  • Two lung transplants; one in the UK and one in the USA.
  • Three confirmed prenatal diagnoses of ACD without a family history.
  • One NORD research grant in the amount of $50,000.
  • Thirteen rainbow babies born to ACDA registered families.
  • Two tattoos of the ACDA logo.
  • More than ten journal articles published about ACD.
  • Numerous successful fundraisers for ACD research and awareness events.
  • One continued goal – To find the cause of and cure for ACD.