Completed – Individual Fundraisers

Individual ACDA families have raised awareness and research funds in many ways. Please click on the links below to read about completed individual fundraisers and campaigns. Although the individual fundraisers listed below have been completed, donations can be made directly to the ACDA at any time via the “Donate” menu button. Please contact us at at secretary@acdassociation.org if you would like us to add a summary below of your individual fundraiser benefiting ACDMPV research.


IN MEMORY OF SEB BLENKINSOP

Description:
Seb’s Charity Night
Fundraiser Date:
October 23, 2015
Location:
Hartlepool, England, United Kingdom
Amount Raised:
£2,730.30 (contributed to The David Ashwell Foundation)

Seb Seb’s Charity Night – Friday, October 23, 2015
Entertainment, Music, Fun, Raffle, Pies & Peas and much much more
Adult £3 per ticket
Children £1 per ticket
Let’s raise money in memory of Seb for ACD. Visit the fundraising page HERE.


IN MEMORY OF HOPE DAVEY

Description:
Mother’s Day half marathon in honor of Hope
Fundraiser Date:
March 15, 2015
Location:
Northampton, England
Amount Raised:
£3,497 (contributed to The David Ashwell Foundation)
 The Davey family team ready to run the Silverstone Half MarathonThe Davey family from Northampton took part in the Silverstone Half Marathon to raise money in memory of their baby who lost her battle against a rare lung condition. Hope Davey passed away in September 2014 at the John Radcliffe Hospital, barely a year after she was born with Alveolar Capillary Dysplasia (ACD).  Read the newspaper article HERE and visit the fundraising page HERE.

IN MEMORY OF SADIE ROSE MCCASLAND

Description:
Fundraiser in honor of Sadie’s first birthday
Fundraiser Date:
February 2015
Location:
Colorado, United States
Amount Raised:
$4,055

SadiePlease help me wish Sadie Rose happy birthday and remember her beautiful short life. Visit the fundraising page HERE.


IN MEMORY OF JOHNNY RISTA

Description:
Fundraiser in honor of Johnny’s first birthday
Fundraiser Date:
February 2014
Location:
North Carolina, United States
Amount Raised:
$12,000

Johnny“$20 for the 20th” is a request with gratitude for $20 donations in honor of Johnny’s upcoming birthday on February 20th. 100% of donations will be donated to the National Organization for Rare Disorders and specifically applied to the “Alveolar Capillary Dysplasia” (ACD) research fund in honor of Johnny. Visit the fundraising page HERE.


 IN MEMORY OF ALEX

Description:
Thomson Airways Fundraiser in honor of Alex
Fundraiser Date:
May 2012 – August 2013
Location:
Cuckfield, United Kingdom
Amount Raised:
£36021.32 ($59,236) (contributed to The David Ashwell Foundation)

On each Thomson Airlines flight, money is collected for charity. Each airport base has a local charity that they nominate and then a quarter of all money raised throughout the year goes to that charity. This year I nominated The David Ashwell Foundation and have just found out that it is now the official local charity for London Gatwick Airport. We have well over 100 flights per week, both long and short haul around the world so many thousands of people will now be made aware of ACD and lots of money will be raised for more research. Am so proud of my colleagues for voting for the David Ashwell Foundation and to Amelia and Simon for setting up a UK based charity.


IN MEMORY OF ERIC HANSON

Description:
Benefit concert in honor of Eric Hanson
Fundraiser Date:
June 15, 2012
Location:
Dallas, Texas, United States
Amount Raised:
$3,000+

EricSara Hickman, the 2010 Texas State Musician, headlined a benefit concert in Dallas, Texas on June 15 for ACD research. We welcomed family, friends and guests to Uncle Calvin’s Coffehouse for a night of live acoustic music by Sara and the Houston based trio, 2-Bit Palomino. Friends that could not attend the concert sent in donations to NORD so we are still waiting to make the final calculation on how much money we raised but expect over $3,000. It was a memorable evening full of laughter, raising awareness (even with our friends) and a moment of silence for Eric.