Update (February 28, 2018, 11:59 p.m. EST): As #RareDiseaseDay 2018 draws to a close, we would like to give our sincere thanks to our ACDA community, including generous donations made this evening in honor of Hannah, Amelia Lee, Dawson and Chelsea. It has truly been a fantastic day of awareness and giving.
Stay tuned for updates in the coming days on the total amount raised in connection with #RareDiseaseDay 2018! The funds will be contributed to ACD research grants and supports the efforts of the medical community to find the cause of and cure for ACD. If you missed today but would like to contribute, please visit our website here at any time – https://acdassociation.org/donate/
Searching for answers…hoping for a cure.
Update (February 28, 2018, 7:00 p.m. EST): Thank you for the additional generous donations in honor of Dean, Joseph, Myla, David, Phoebe, Ronan, Imogen, Avery and Fraser! The donations are flowing in and the day is not over yet if you would like to make a donation to find the cause of and cure for ACD in honor of a loved one. Look for another follow-up post recognizing tribute donations received this evening! Thank you for your continued support on #RareDiseaseDay 2018!
Update (February 28, 2018, 2:00 p.m. EST): Thank you for the generous donations so far today in honor of Callie, Valerie, Fallon, Annabelle, Sadie and Johnny! #RareDiseaseDay is our final push towards funding a 2018 grant for ACD research, to be awarded and announced later this year. Please help us cross the finish line! Look for additional follow-up posts recognizing tribute donations made throughout the day. As always, thank you for your support!
Update (February 28, 2018, 12:01 a.m. EST): It’s here! Today, February 28, is Rare Disease Day! In addition to spreading awareness about ACD, today also marks one of the ACDA’s biggest fundraising days of the year and your support matters.
We will be showcasing donations made today in tribute of a loved one with a special “Rare Disease Day” recognition image featuring the child’s name. The ACDA will also send a card to the honoree’s family acknowledging your gift. When you give in honor or in memory of someone special, you also support our mission of finding the cause of and cure for ACD.
Today is a great day to wear your ACDA T-shirts, sweatshirts or other apparel featuring the ACDA logo. Please post a picture in the comments below! We will compile all the pictures into a slideshow for our website.
Numerous organizations and schools around the world are participating in our #JeansForGenes campaign to wear jeans to work or school with a donation. Other ways to participate include visiting our ACDA store linked below or simply inviting your friends and family to “Like” our Facebook page.
We look forward to a meaningful day in honor of all the babies and children gone too soon or affected by ACD. Thank you for your continued support of our very important mission! #RareDiseaseDay, #ShowYourRare, #WRDD2018, #ACD, #ACDMPV
The ACDA is a 501(c)(3) non-profit, tax-exempt organization as designated by the Internal Revenue Code of the United States. If you would like to help fund research into ACD, please donate here: https://acdassociation.org/donate/
If you live in the UK or elsewhere in Europe, you can also make a donation directly to our sister organization, The David Ashwell Foundation, here: https://uk.virginmoneygiving.com/…/finalCharityHomepage.act…
ACDA store: https://shop.spreadshirt.com/ACDAssociation
ACDA Facebook: http://www.facebook.com/ACD.Association
ACDA Twitter: http://twitter.com/acdassociation
ACDA website: https://acdassociation.org/