Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year – February 28 in 2021. The ACDA has signed on once again to partner with NORD to support this awareness campaign and we encourage everyone to participate in some way. Click to see how the ACDA supported Rare Disease Day in 2020 (also 2019, 2018, 2017 and 2016)!
Below are a few suggested ideas:
- Join the ACDA on social media by using the new ACDA profile frame (access HERE) to share that you love someone rare! Also use the hashtags #RareDiseaseDay, #ShowYourRare, #WRDD2021, #ACD, #ACDMPV
- Organize a fundraiser (Facebook or direct give) to raise money for the next ACDMPV research grant.
- Contact your local newspaper to write an article about what Rare Disease Day means to you. Click HERE to read various articles previously written about our ACDA families.
- Stay tuned for additional ideas and materials!
Facebook Profile Frame (access HERE)